Perinatal Bereavement Documentaries
Hello and Welcome,
I am so happy you found your way here, and I hope that these research documentaries provide you with what you hope for on your journey of living and transforming with loss or as you facilitate the learning of students, healthcare professionals or the public about perinatal loss (loss that occurs around the time of birth).
My first area of research on perinatal loss began with mothers' experiences of infant loss using an arts-based narrative method. After this study was completed a research documentary exploring further how mothers live and transform with loss was produced. It is entitled, Enduring love: Transforming loss (Jonas-Simpson, 2011).
All the mothers who participated in this documentary spoke of their children's experiences of grieving and mourning the loss of their baby sibling, even though this was not an interview question. As with other sibling loss, the children whose baby sibling died also experienced continuing connections and lifelong relationships long after the physical death. This theme was so compelling that it led to the creation of a short documentary (cut from the longer version) entitled, Why did baby die? Mothering children living with the loss, love and continuing presence of a baby sibling (Jonas-Simpson, 2010).
The third documentary entitled, Nurses grieve too: Insights into experiences with perinatal Loss (Jonas-Simpson, 2011) was born from my experiences of losing a child and noticing how much my loss affected the nurses and doctors that cared for me. The research team and I conducted a study on nurses' experiences of caring for families whose babies were born still or died shortly after birth (Jonas-Simpson, McMahon, Watson & Andrews, 2010). I was struck with how similar some of the nurses' experiences were to my own experience of grief, and I decided to explore further the nurses' experiences of grief which led to the creation of this third documentary.
Finally, my latest documentary entitled Always with Me examines the experience of children who grieve, mourn, and live with the loss and continuing presence of an infant sibling, as well as the positive grief outcomes that may result when a child has a continuing bond with a deceased infant sibling. Nine children and five parents from four Canadian families volunteered to share their stories of loss, grief and deep love. In this film the children share their ongoing relationships with their baby siblings and provide messages to other children about what might help them. The parents provide their perspective on their children's grief.
Please let me and my research team members know what you think of our documentaries. We always appreciate feedback. Thank you for your interest and for the many emails and kinds letters of support.
Love and Peace, Christine
Christine Jonas-Simpson, RN, PhD
Christine Jonas-Simpson is an Associate Professor in the School of Nursing at York University. Her arts-based program of research focuses on experiences of living and transforming with loss. Christine produces research-based documentaries on experiences with perinatal loss (Nurses Grieve Too, Why did baby die? and, Enduring Love: Transforming Loss). Her current film, Always With Me: Understanding Bereaved Children Whose Baby Sibling Died, focuses on children’s bereavement. She is the author of the children’s book, Ethan’s Butterflies: A Spiritual Book for Young Children and Parents after the Loss of a Baby (Trafford). Christine lives in Toronto with her family.